Forbidden Food for G6PD Cases
By emievil
In our family, there has been a rising trend in G6PD diagnosed cases in my 2 nephews and my niece. G6PD is Glucose-6-Phosphate Dehydrogenase Deficiency. It is a condition inherited and passed on through the X chromosome and is said to be a common deficiency of human enzyme. This deficiency causes red blood cells not to function normally. It may result to hemolytic anemia if the person is exposed to certain medicines, food or even infections.
When we got our first (diagnosed) case of G6PD in the family, it seemed so unreal. Since we didn’t have prior experience of this deficiency, we didn’t know how to react. What made it worse was that our first case was classified as “severe”, that is, exposure to the prohibited medicines and food may cause death to the child. So we started educating ourselves about this deficiency. We found out which medicines were not allowed on the child, and even which vitamins should not be taken in excess. Most of all, we found out which food was not allowed for the G6PD child. Our research has led us to the following food generally not allowed for them:
A Link on G6PD
- G6PD DEFICIENCY INFORMATION WEBSITE
G6PD Deficiency, a disorder affecting the X-chromosome, was once thought to affect only men. G6PD Deficiency is now known to affect women much more than originally thought.
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Fava Beans. This is the number one “no-no” food for the child and has been proven to trigger the symptoms. This is so related to the deficiency that G6PD may be sometimes referred to as “favism” in reference to this food.
Legumes. Beans, black beans, etc., this is another group of foods that must be avoided by children / adults with G6PD.
Soya or Soy. This is an additive to some common food that we eat, including ice cream, burgers, pizzas, chocolate, doughnuts and other food products. It may go by different names but it is definitely one of those food or food additives that should be avoided if one has G6PD.
Peanuts. Peanuts (in particular) and legumes (in general) are found everywhere, including peanut butter, cereals, sauces and salad dressings. Legumes are vegetables and are, supposed to be, in general, good for ones’ health. Peanuts are known as “brain food” and are becoming more popular with recently-discovered antioxidant qualities. But for G6PD cases, avoiding these foods is highly recommended.
Menthol-Flavored Candies and Food. People with G6PD are not advised to not only eat menthol-flavored candies and food, they are not allowed to inhale this substance as well! Menthol can be found in various candies, in mouthwashes, toothpaste and gums. For children with G6PD, it is doubly hard to avoid menthol-flavored candies but avoiding these is not a matter of choice for them but a matter of survival.
Note There are times when these food can be found as ingredients in certain processed foods. Like peanuts in chocolates or soy added as meat extenders or in butter. The key here is to read the ingredients carefully to check for these food. When you see them, avoid these food at all cost. Better to be safe than sorry.
Other Links on G6PD
- Home - G6PD Deficiency Association
The homepage for G6PD information, facts, how to's, etc.
The above are the food my nephews and niece are not allowed to eat. They are a lot fewer than the medications not allowed for people with G6PD (the list of medications is almost one page long while the above is like only a half page) but they are no less dangerous. Knowing this has made us more conscious in terms of reading food labels and checking the ingredients. The children are also taught at a very young age to choose the food that they eat (my two and a half year old niece already knows that she cannot eat peanuts!). Lastly, their parents made sure that the people around them (especially their doctors, teachers and classmates) were advised that these children need to avoid certain foods. This is to ensure that we gain their cooperation. Children with G6PD may grow up to live healthy, normal lives and this is what we hope for them (my nephews and niece) as they grow older and more adept in handling their deficiency.
Note: The facts I wrote here are all based on consultations with my niece / nephew's pediatrician and the websites I have provided links to on the right side of my hub. Although the Internet is a great place to look for information on G6PD, my advice is still to consult your child's doctor. G6PD may be relatively unknown for people outside the medicine profession but I have found that, in general, doctors are very well aware of this condition.
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Comments
Yes, it's kind of hard to have this deficiency. Fortunately, a lot of people are becoming more aware of it so it's getting easier to get information. Just hard sometimes to explain to the child why he / she can't eat a certain type of food, especially peanuts, which is my favorite too. Thanks for the comment, dohn.
I am always learning something new in here. G6PD can be extremely serious if not diagnosed on time. It is amasing how we take things for granted and hardly ever think about the ingredients on the things we are eating or feeding our children with.
Thanks for such an informative hub and a big hug to your niece and nephews.
Thanks for the comment and the hug Princessa. Actually, my husband and I are the ones taking care of my niece and I'm proud to say that we have already taught her which foods she cannot eat. Having her with us certainly increased our awareness of this deficiency as well as the contents of some food that we eat.
I have never heard of this disease. What symptoms would make you suspect you might have it? Is the peanut allergy we hear so much about part of this? Just curious.
I don't think there is any symptoms. The disease is diagnosed during the tests done right after a baby is born (which was how we found out about my nephews and niece). Anemia is the most likely result when the child with G6PD eats food or takes in medicine that are not allowed for such cases. As to peanut allergy, I'm not really sure if this is related to G6PD. Will try to look that up.
i have G6PD an i eat most of the food above such as peanuts and beans but nothing happen. The only thing i garentee that is true is fava and mothballs
Ian, are you a mild or severe case? Mild cases can risk it and eat these foods. Severe cases, dare they risk it? My nephews and niece also eat some peanuts but we try to steer them clear from these things. Better be safe than sorry.
my son was diagnosed with g6pd. so, how am i going to know if he has a mild or severe type of this disorder? do you have a complete lists of foods and medicines that he's not allowed to take or eat? please e-mail me at this address papilit_z02@yahoo.com..please and thank you!
Hi jonas erick. Please check your email. Thanks.
is there a possible cure for g6pd?
As far as I know, none.
my son was diagnosed to have a severe case of g6pd deficienty... he's 5 months old now and i'm afraid to start giving him solid foods since i don't know which ones to give my baby... i hope u can help me on this.
Hi sally. I'm not an expert by any means but I'll try to help. First, you can check out the sites I have listed above. These are sites where you can see what your son can or cannot eat. Second, please get a good doctor who knows g6pd very well. They should give you a brochure or a listing of the do's and don'ts for your son. Third, solid foods are okay but please be conscious about the ingredients. We got into the habit of always looking at the list of ingredients for any indication that the food contains peanuts or soya or beans and stuff and as much as possible we don't give the food to the child. Most foods are okay (suggest you prepare them yourself so that you're sure what they contain), you just need to have a long, serious talk with your doctor so that you'll feel confident about your approach. Hope this helps.
ths is really very helpful for me. i just receive the NB screeining result of my son ad foundout that he is positive in g6pd.. i cant sleep since then so i started researching about this disease. thanks for the info.
hi,
pls email allm important details about g6pd. i wold really appreciate if you could help me regarding my sons condition.. my email add is. maezon21@yahoo.com
What are fava beans called in marathi /hindi
my email : umeshdalvi123@rediffmail.com
i wanted to know if any one had a list of food and/or medicines that my son can not have if please e-mail me @ patience_dozier87@yahoo.com P.S my son just turn two and he has been drinking SOY MILK since he was about four or five months will that hurt him PLEASE HELP ME UNDERSTAND G6PD
can i too have a list of the foods my son needs to stay clear of. im till this day learning new things about this deficency.
Hi
My daughter has G6pd, she is turning to 3yrs old on April 17, I am afraid for her condition, now that she is having friends and offering her food. pls help me if you can email me what are food are not allowed for this condition including medicines.pls send to my email ad at awieodavar@ yahoo.com
I was just diagnosed with this around October and am 21 years old (I was however born with Jaundice and stayed an extra 3 days but that was it). I am your normal, healthy, young women, an athlete, group exercise instructor, personal trainer, Health Fitness student so this came to me as a surprise. I would have never known had it not been a test I needed to go overseas. I have a mild/moderate case. Looking at your list of foods...I guess I would be hit. I eat them all..ALL THE TIME. My friends say all I eat are nuts and berries lol. But I must admit they do comprise a high percentage of my diet, along with beans. Just had butter beans over the weekend) and I actually just had a bowl of trail mix before I got on the computer lol Anyway, I don't want to keep being so risky carrying on as normal so I'm trying to find out what I shouldn't be eating though I've been fine for 21 years...here's another link for you all http://www.g6pd.org/favism/english/index.mvc there are lists and lots of info as well as forums with people from all over the world. best wishes everyone.
Thanks for the link Clig010. I suspect there are others who are already of age right now who are also G6PD cases. If you've been fine for 21 years eating all these food, congrats. But I don't think the effects are immediate, especially if your case is a mild / moderate one. One of my nephews is a severe case that's why my sister, his mother, is very careful about what he eats.
my son was diagnose with g6pd and i have been trying to read alot about it. i have also realised that garlic and onions contains sulpher which was actually giving my son a reaction so i stoped adding to his food and those reactions stopped
vida
how am I going to know if my son has a severe G6pd? please e-mail me---ipedroche@yahoo.com..he was screened postive two weeks after birth.. we had are waiting for the confirmation after two weeks. please let me know.
my son was diagnosed to have a g6pd.....so afraid about it....most esp.I'm not only the one giving food to him... his turning 3 years old...how can i tell him that most of the food we are eating is not good for him.....pls send me some information regarding the food and medicine that should be avoided............I went to a doctor and asked for advice.....they told us that soya, and some other beans are ok but we went to another doctor for a second advice and she told us to prevent all kinds of beans.....what is true?is it fava beans the only one beans to be avoided pls advice us coz I'm afraid for kid.....email us all the information regarding g6pd......... my email add is: djjzzy_1726@yahoo.com ,........thank you so much
Thanks for these useful info my so was diagnosed with g6pd he's 7 mons now. Im worried about those food that he may eat when he grows up if it happen what should I do please give me some advice regarding this matter. Thank you very much and more power.
THANK YOU VERY MUCH,THOUGH MY KIDS HAVE G6PD FROM MANY YEARS.I WAS NOT AWARE OF ALL THE FOOD TO BE AVOIDED FOR THE G6PD EXCEPT FOR FAVA BEANS UNTIL NOW WHEN I READ ABOUT IT THANK YOU FOR POSTING THIS I AM SURE YOU WILL BE HELPING MANY MOMS OUT THERE.
I was diagnosed with g6pd 2 years ago by a simple blood test. Ihve bee a anemic for about twenty some odd years but had normal irion level and was taken iron pills. one doctors told me to stop taking the iron pill for i will get poisen. I am 67 years old and have g6pd.
Hi everyone. Thank you all for your efforts on making this deficiency better known. I actually am not G6PD deficient-thank God- nor anyone in my family. The thing is I got a proposal from an awesome guy, and he told me he's got it. His case is severe - G6PD level is 8%. I'm afraid a little about it. Now I've done all the reading and research, which even as for me being a last year med student really helped me understand this disorder better. I have gained alot of info on it, so if anybody has any specific q's you can ask, I'd be more than happy to share the info.
I'd like to however talk to anybody here who is older and has the deficiency. I want to know if this can take a toll on a person's life in the future.
So, John, you're 67 and you've got it. I'd appreciate it if we could communicate about how you've coped with it, and the level of g6pd that you have.
Waiting for your reply and anybody's q's.
wish you all the best health to you and your children.
nisrin_of_arabia@hotmail.com
What you listed here are most likely for severe cases of G6PD deficient people. For mild cases, the people live a normal life and eat almost everything you listed here. Also, for bigger kids and grown up, the worries is less.
Im sorry but i have g6pd and i am not allowed to take certain medication but im allowed to eat everything apart from broad beans
my son is 3 months old and he was diagnosed with g6pd, at first i don't know what to react but now little by little i accept that he was one with that case. i've been researching in the internet about this deficiency and the foods and meds to avoid but i want to know more about the foods needed to avoid, can you please give me a list and how will i know if my son is in mild or severe case? please, please e-mail me: artha_08@hotmail.com
I would like to know also if vitamin c and vitamin D can be taken for a child who has been diagnosed for G6PD deficiency?
hi everybody! i have a 10 mos old daughter who diagnosed with g6pd & just like all parents, my world collapsed when it was confirmed,now, im trying my very best to avoid those forbidden foods and drugs but i know it would be very hard specially that i'm a working mom. i want to know if she has severe or mild case,.
to nisrin: i would be very thankful if you could help me identify the case of my baby,her first result was .40 and the normal range is >1.5 U/gHgb and her confirmatory result was .70, 26 days after she was born, pls help...pls email me dahl_74@yahoo.com ....i am looking forward for your help..
My son is juat 23 days old. the confirmation result was 1.65 is this severe? My wife is breastfeeding does she have to be careful on what she eat? can she eat food made of soy souce. What about formula milk is enfalac ok I found out it has soya oil. What formula milk would be good for my baby.
wow thanxs
I am a 38 year old African-American female and was diagnosed with G6pd over 18 years ago when taking a physical to enter the military. At 20 years old, I was energetic and ate whatever I wanted failing to pay attention to any medical/food warnings. Over the years, I noticed sometimes I would feel drained and tire out faster than some of my peers. I even had some times where I would have trouble breathing while running -- actually passed out during a run a few times. I never had any asthma problems growing up, but the docs figured I had sports induced asthma. Long story short, over the past year, it happened more frequently. Last Fall, I was rushed to the emergency room 3 times in a month for shortness of breath and weakness. I was scared and frustrated - afraid to fall asleep not knowing if I was going to awake. I saw 5 different docs over 2 months. My primary doctor asked me to journal my food intake (since he thought I was allergic to soy or MSG)...what a breakthrough! After journalling my food intake for about 2 weeks, including reading labels...the common factors were soy, MSG and menthol. Still, not putting 2 and 2 together, I found a copy of my first medical record from 1993 and the first thing in RED said G6PD. Thanks to the internet, I searched G6PD and found so much info. What's even scarier, I had 90% of symptoms of hemolytic anemia the times I went to the emergency rooms, including a heart murmur. I took my newfound info to my primary care manager who thanked me for pointing this out and declared to share it with the rest of his staff. I'm sorry that these comments are so long, but I have to urge those of you who say you can eat things on the list with no problem -- so did I, but as I got older, it caught up to me in a serious, serious way!! Please, please, please be mindful of the contraindications. I stuck to a very strict diet to recover from what I had did to my body. Believe me, you do not want to go through what I went through last year - ever. I feel so much better now....no bleached flours, no white sugars, minimal processed foods, and an avid label reader. I cook my own food most of the time and stay up on antioxidants, purchase organic when possible, especially produce -- check with the chefs when eating out. I know the list is long but MY LIFE is worth it, and so is YOURS. I see food in a new light and incorporated chlorophyll in my daily routine -- chlorophyll has been amazing -- if I crave those Krispy Kreme donuts, then I ensure I have been on top of my antioxidants and then I can "cheat" because I know I have that cushion. Ok, enough about me, but please take heed -- as we get older, G6PD can be a SERIOUS problem. Warmest Regards!
my 4 mos old baby boy was diagnosed with G6pd, at first I was scared and frustrated, knowing that my son cant have a normal life. but then i realized that i should not be sad instead, because he only depends on me. so i am begging you to please send me a list of foods particularly fruits not to be taken by him. and Also a milk formula that is safe forg g6pd carrier. a million thanks to u in advance. marleneroqueza@yahoo.com
gud day. thanks for sharing with us infos bout g6pd. my question is... is undiluted fruits & citrus safe for infants who has g6pd? thank u
my baby is now 2 yrs old ,im afraid and frustrated that my son is diagnosed with G6PD please i am begging you to send me a list of medicines,foods/drinks and drugs also milk that to be avoided in G6PD DEFICIENCY.This is my email add.nelianne2@yahoo.com or you can text me to this number #09222914250.thank you and more powers..
I'm a chronic G6PD deficiency.
I have problem when I took yem too.
Is ist teh case and anyone can comment
hi! i have a 7 weeks baby girl diagnosed with G6PD, very much worried about her condition, pls. send me the complete list of foods and medicines to be avoided. my email add. is almalambert@yahoo.com, how about the milk formula she is using right now? its S26. almost all milk formula has soy ingredient.
i didn't know this, i have no problem with menthol candy, toothpast, ect, i can also drink soy milk and have soy sauce, as well as eat peanuts. i think its only the fava-beans and medicine that get me
My daughter, 2 months old, was diagnosed with G6PD positive. The Vitamin K, the ingredient in milk, can affect her? Thank in advanced. makbunthoeurn@yahoo.com
Naturaldoll... you win the prize (if there was one) for hitting the nail on the head with your post! I recently married a wonderful man with chronic hemolytic anemia due to a more serious form of G6PD. Ten years ago he was forced into early retirement from his job as a computer program engineer because of neuropathy in his feet, a complication of G6PD and chronic anemia. In doing research, he became extremely frustrated with the lack of accurate information, as well as rumors and myths about the condition, diet, etc. from the doctors, and on the web. So, three years ago he created his own website. He has included a huge database of contraindicated foods and drugs, as well as a very active forum for people to get support and accurate, updated information. The stories and comments I have read are very similar to naturaldoll (Thank you for your post!), as so many people think that because they are symptomless that they can eat whatever. Some of those people (as is my husband) are suffering either from the long term affects, or, are no longer with us. Those of you who have been diagnosed with this disorder, please be aware that there are over 400 variants, and because this condition has only been recently identified (maybe 60 years ago... which is not very long considering medical research history) there is a lot of misinformation floating around. The medical establishment is not trying very hard to encourage testing of this condition, as it is estimated that 10% of the population has G6PD deficiency, which would definitely affect drug companies' bottom line! Naturaldoll said it best: "I have to urge those of you who say you can eat things on the list with no problem -- so did I, but as I got older, it caught up to me in a serious, serious way!! Please, please, please be mindful of the contraindications. I stuck to a very strict diet to recover from what I had did to my body. Believe me, you do not want to go through what I went through last year - ever."
IF you urinate blood and have yealowngites from g6pd please go fast to the hospital and inform the doctor about it and please tell them that only thing to save your life is to give you blood transfusion as fast as they can.Some doctor they may not be informed about it.I had 2 episode like that first time i was 10 years old and
my son was diagnosed with g6pd,.and im so worried..how can i know if its mild or severe type of this disorder and can you pls send me a complete list of foods and medicines that not allowed to take or eat...heres my e-mail: julieannsarmientopadre@yahoo.com and julieannpadre@yahoo.com..thanks a lot
by the way,,is yogurt safe for g6pd?thank you verry much
my son was 2 months old. he was diagnosed with g6pd. the confirmatory test result was 1.5 u/g Hb. Is this severe?
I also want to know the lists of foods and drugs that not allowed for him..please e-mail me at rain_azide@yahoo.com..
Thank you.
can kids with g6pd eat raisins? my 2 year old boy has g6pd. having a hard time looking for complete information about g6pd. even doctors seem to have different lists of food they can't eat. DOES ANYONE HERE KNOW IF G6PD KIDS CAN EAT RAISINS?
my son was diagnosed with g6pd. so, how am i going to know if he has a mild or severe type of this disorder? do you have a complete lists of foods and medicines that he's not allowed to take or eat? please e-mail me at this address lourdes_1225@yahoo.com please and thank you!
i can't believe that i have g6pd
pls send me a copy of lists of the foods and drugs that should be avoided by a person with this kind of disorder. here's my e-mail add. joannequimado@yahoo.com/THANKS
hi my baby was born with g6pd he is 1 month tomorrow i am so scared i cry alot an pray but GOD he never let me down so i no he is with us both
Hi everyone i'd like to clear a bit about G6PD it is NOT A DECEASE its only a deficiency please take note that. My son too has it and he got it from as a carrier maybe mine is not that serious cause i can eat anything w/out any side effect and even mothballs has no effect on me. But my son is a different story all that is prohibited for him is a totally no. He is now 7 yrs old. He accidentally ate a piece of fava bean one time while playing at the playground, his friend offer him and he took it forgetting what about its danger. I was so worried because a simple mistake can lead to a serious situation. Luckily nothing happen to him.
for all those with food queries, check the link for a very complete page (http://g6pddeficiency.org/index.php?cmd=contrafood You can also check http://www.g6pd.org/favism/english/index.mvc?pgid= ...... kind regards
how am I going to know if my son has a severe G6pd? please e-mail me---darkshadow_ronsky@yahoo.com thanks
gosh,,,after we informed about our baby's new born screening, they found out he had a g6pd,,and now we brought him to other medical center for a confirmatory test,,this article is really great,,i learned what food we will forbid for our baby,,haizt,):
Hi my son was diagnosed with g6pd.after confirmatory test the result was 13.05u/g Hb please let me know if 13.05u/g Hb is a negative result for g6pd. please email me at leacardinez@ymail.com.
this is very informative..
well i am diagnosed with g6pd since baby..
but i only knew recently..
can i have a list of g6pd prohibited medication and food..
my email
asrio_88@yahoo.com
Great information which was correctly shared for everybody understanding.
my son was diagnosed with g6pd.how am i going to know if he has a mild or severe type of this disorder? do you have a complete lists of foods and medicines that he's not allowed to take or eat? please email at this add...kennypolendey@yahoo.com
Sweet hub with superb information which am glad to come across.Love this article a lot.
goat's milk is good for babies with G6pd deficiency. it's available already.
this is a very useful information for me! my son has G6PD... thanks
my sister was diagnosed with g6pd. does it mean i'm also a carrier of this deficiency?
ten ten, personally, I think the answer is yes. But you need to ask a doctor, a specialist if possible, for this.
hi! my baby is turning three and she's also a "g6pd-baby". since the confirmatory test result came out, i have been a fan for new articles regarding their cases. it was very tormenting at first and reading a lot about their case, specially knowing what and what not give,the medicines, and the symptoms if ever hemolytic anemia threatens them, is empowering. It made me more vigilant to read labels and ingredients before i buy/ give to her. Also my fear for all those food to be avoided lead to resorting to all home-made and healthy food :)
Right now, i'm just considering this g6pd thing something like an allergy (only they seem to be a never ending list of food/subs. to be avoided)and does pacify me from worrying much...she's very active and healthy as of now so yes they could live a healthy normal life. Big hugs to all mommy and daddy of g6pd baby:)God is watching them.
By the way, im interested about the test to determine the severity of their case, pls e-mail me about it (arianne.alejandrino@yahoo.com).thanks for your shared info :)
hi emievil, can u email me as well on how to determine severity of G6PD? my email is zye2711@gmail.com. thank you very much
My 4 year old son was diagnosed with g6pd. Im very sad knowing that he cannot live a normal life. His doctor gave me copies of the medicines and foods that should be avoided. So i depended only with that copies but so frustrated that when i started browsing the internet about the G6PD i've learned that the info i've got from his doctor was only minimal. So i was very thankful that there's a topic about G6PD in the internet. So informative. I can be more watchful now of my little boy's food intake and also the medicines.
Good information. I am diagnosed with g6pd since baby however i only know i cannot eat broad bean and avoid certain antibiotic. Recently, my allergicness become worse. Even after I avoid foods etc that I thought would cause it. Seems like when you get older with g6pd, the effect will be greater if you do not really care what you eat and drug taken. Thanks for the information as I need to start cut all things than forbidden so I can enjoy my life and avoid risk esp medical cost really high nowadays. To Naturaldoll and Melody...thank you for the new information as well.
Thanks to all your stories and advised my son is 5 months old now and im carefully checking food labels and food items that i can give to my son to avoid such complication and let my son be normal as he is now.. thanks to the website you share.. thanks so much guys....
I am only half African American half German American. I was recently made aware (by the Army) that I have a G6PD deficiency. I had absolutely no idea what it was when they told me, and the explaination they gave wasn't that great. I went home and started doing some research, and this site gave some of the best information! What is scary is that I've been suffering for years, and never understood why. I haven't had this issue my entire life, but as I am getting older (nearing 30), the symptoms got worse and worse. To the point where I couldn't do anything well, and when I went to bed I hoped to wake up feeling better, or not at all. With this information in hand from your page, I started eating better and reading labels. I haven't felt this great in some time! It kind of stinks that I can't have all the things I've enjoyed for years, but I gladly give it up! Staying healthy and living a normal life is way more important. Thank you for sharing this with us.
Hi! my nephew has G6PD. We always make sure that he eats the right kind of food so as not to trigger symptoms of his disease. I just want to ask if he can eat cashew nuts? are they included in the foods which should be avoided? t
Hi. My 2 month old son has class 1 of G6PD and am very scared for him. Does anyone on here have class 1 g6pd and can you tell me if anemia would be present even though they try to avoid all the foods and medications they are told not to have? will he lead a normal life with class 1 g6pd? thanks.
Some of my wife's side family have G6PD, so I had my son's blood checked for it when he's 1 month old. And he did have this deficiency. We have avoided fava/broad beans and most medications till this date. He is 5 now and never had any sympton. He eats nuts, berries, and soy beans. My wife's family are Taiwanese/Southern Chinese. The food and medications to avoid might be dependent on the geographic location of your ancestry.
For parents of G6PD kids/babies, are there alternative medications to take if you need to avoid certain medications?
Do you guys know the level of your child's G6PD level? I'm surprised DAMON that he eats soy beans. My son's level is 0.5 (class 1) so I wonder what he can tolerate. Does anyone know?
i have a 6 month old son and is also g6pd deficient. just like any other parents i'm also very anxious bout my son's condition. could you guys send me also the complete list of foods and medicines to be avoided(darwin.sanchez@724care.net).i would really appreciate very much. thanx
pls send me a list of all food and medicine to be avoided I have for some reason one Doctor say one thing the other says the opposite I am so lost now and my son just started school. please email me @ leann.pr@gmail.com I gladly appreciate... bless ur Heart
this are the most common in new born screening test.. many people doest know that they had this gspd, because if u see them they look like a normal individual, complication of this kernecterus and kidney failure.
my son was 2 months old. he was diagnosed with g6pd. the confirmatory test result was 2.5 u/g Hb. Is this severe?
I also want to know the lists of foods and drugs that not allowed for him..please e-mail me at get_052080@yahoo.com..
Thank you.
hi. thank you for the information, it can help me to understand about g6pd, because my son have it, he is 1month old right now,can you email me more information regarding the foods and things to avoid, and how to know if its mild or severe. thanks.
this is my email ad- donsky0429@yahoo.com
My 3 yrs old son is a g6pd deficient, it worries me a lot! please email me @ vgtervonz@yahoo.com the complete list of foods & drugs to be avoided.
Thanks & more power
My son and daughter were g6pd deficient. How do I know that it is mild or severe? pls. help me! thanks!
my 6 mos old baby boy was diagnosed with G6pd, at first I was scared and frustrated, knowing that my son cant have a normal life. but then i realized that i should not be sad instead, because he only depends on me. so i am begging you to please send me a list of foods particularly fruits not to be taken by him. and Also a milk formula that is safe for g6pd carrier. thanks to u in advance. lejangrace@yahoo.com
hi my son is diagnosed with G6Pd. my husband is Macedonian,and I am Japanese background. we went to a blood test to check which one is a carrier.but, we are all negative...how come my son got this deficiency....we can not believe.. Also we take him to a hematologist and she told us as long as he avoids fava beans, it would be fine. soy is fine too. I dont know what is right infomation. I am breastfeeding and eat whatever i want including soy products, nuts and extra. my son is growng healthy.
i have an 8-yr old son who has this deficiency. i don't allow him to eat all kinds of nuts, including sesame seeds. with his case its not only g6pd but with severe nuts allergy. at an early age of 3, I taught him to recognize the words NUTS, SOYA and LECITHIN. this really helps and most of the time before buying any food i always asked him to read the ingredients before getting it.
my 11days old niece just had undergone newborn screening test 24 hours after birth and was positive with g6pd. tomorrow we will take a confirmatory test to make sure.we are worried. my brother is 20 and my sister-in-law is just 17. Now I am taking every information on what should be avoided just in case, but we are praying its otherwise. thank you for the information.....
pls.send me a list of food,fruits and drinks not to be taken of ny son,and also milk that is safe to be taken and how can i know if its is mild and severe.thanks so much..and more power
my son was diagnosed in G6PD, the result of confirmatory test was 2.19 U/g Hb is this positive?
If positive, is this severe case of G6PD?
please email me at vacaljohnbrian@yahoo.com
Thank you....thank you for these information maam.
you have provided enough information.thanks a lot.
my son has also g6pd case. And i was worried for the foods he eat.
@Brian
You are better off asking your doctor for details on the results. The value you have mentioned does not mean much for anyone unless it is compared to values for a person who is not G6PD deficient.
@leo
The G6PD deficient gene is carried on the X chromosome, meaning the mother is the carrier, or positive for it.
As a mildly G6PD deficient person, my parents have told me that it isn't difficult. All a parent needs to know is what to avoid. It isn't as much of a hassle as other allergies (my cousin has a severe peanut allergy where skin contact causes anaphylactic shock, and cannot consume beef, pork or milk). The general outline for me was no aspirin/fava bean/sulfa drug and avoid contact with mothballs.
I have had no negative symptoms to soy/peanuts/pinto bean/black bean/kidney bean consumption and have competed in athletic events after having them for lunch or as a snack. I will admit that tolerance can differ from person to person.
Reactions to NSAIDs such as acetaminophen/ibuprofen should be monitored carefully. Some people cannot tolerate those drugs and some doctors will be careful about asking G6PD deficient people to consume them. I have had no negative effects to over the counter drugs.
I`m a mother of four year old son with g6pd.I worry a lot about his health.How can I know that my sons` case is severe or not?Please help me.ty
my daughter is turning8yrs old this coming dec, she has g6pd, and im worried for her because, she has thi body, and i dont know what, vitamins or food is the best for her, and what is not. pls reply at allan_bec@yahoo.com. tnx
i have G6PD for 11 years now and i'm okay with it
hi ako ay mat anak n may d6pd. salamat sa information na bigay mo.
hi,
my daughter has g6pd,she is 2 yrs and 4months now,i just want to know what vitamins and food is best for her, and what is not. Thank you very much and Godbless. Please reply at gracecemitara@yahoo.com. Thanks
All I was told as a kid was to avoid asprin, fava beans, and mothballs. I didnt reaize I had G6PD deficiency until recently after I had a reaction, shortness of breath and muscle weakness, to ibuprofen. As to the food restrictions they haven't been an issue. My advice would be to inform your kids to thier condition so that they make informed choices and avoid negative reactions. It seems that reactions are specific to individuals and people can have no/mild reactions to some items and serious reactions to others.
how do i know if my grandson is a mild g6pd or severe g6pd
my daughter has G6PD, how will i know if she's mild case or severe? kindly send me information about it. thanks in advance. izza_07@yahoo.com
my 2weeks old baby is also positive in g6pd pls send me also a list of food,drugs,chemical to be avoided.thanks pls. send it to my email pizzatoto@yahoo.com and how will i know if he is mild or severe?
hi!my son was diagnosed with G6PD def, i just got the result today. we'll still bring him to the screening center for the confirmatory test, but i want to be cautious. i am breastfeeding him and want to know if i will also have to avoid some of the foods and drugs that a person with G6Pd def avoids. kindly email me.. rickygel_8@yahoo.com..thank you
how can we determine if the deficiency is mild or severe..pls. e-mail me "ibanzelen@yahoo.com"
thanks a lot in advance...
hi! i just gave birth nov 5 2011 ang my daughter was diagnosed to have g6pd deficiency. i found your story very educating. my husband and i are very worried. we dont know how to care for our baby. i want to know if she has a mild or severe case of g6pd. what the the medicines, foods and not allowed for her. i heard henna is also forbidden for people with g6pd. i always dye my hair with henna. will it be harmful for her? please help. thanks. God bless.
hi,my new born has g6pd.I am feeding him so i want to have the list of food to be avoided by the patient and for mothers feeding their child.i am having trouble to find the proper list.what about soy oil coz every thing including formula milk has soy oil.will it effect the baby if i take it and what is the risk?my email is ghousia21@live.com thank u and mery xmas.
i 5months old baby has a g6pd i started feeding him sold food what kind of should i give him? what is the risk if he eats the food that is bad for him????? thank you.
hi,my son was diagnosed w g6pd def.i want to have a lists of food to be avoided,i need coz his already 3 years old...pls give me advice..tnx..my email is pecayo_ailyn@yahoo.com
R carbonated drinks harmful for G6Pd patients ?
hello. I have a 5m0nths old son he is turning to 6m0nths. I am worried about the safe solid that i will give to him. He is diagn0sed with 1.9 hb. How can i kn0w that it is mild and severe? Can anybody help me and answer me this. Im just woried about the c0nditi0n of my s0n. He undergo 2 abd0minal operation due to urachal cyst. Hes d0in fine n0w and my only problem n0w is g6pd since it is a l0ng life c0nditi0n.. Im begging u guyz to answer my questi0n. Heres my email ad baby_ashley26@yahoo.com
thanks God speed
about soya lecithin in formula milk u dnt have to worry ab0ut it because soya lecithin is already pr0cessed and n0t purely soya. About soy oil it has only one or two pinch per can and its just a little am0unt to trigger hem0lytic anemia. Unless if it is soy s0urce milk like for example isomil (abott), nursoy(wyeth) and etc.
I don't know but maybe those foods just affect people of the "severe" cases because I have only avoided fava beans and have constantly consumed the other foodstuffs or products for 18 years now(I'm almost 19) and nothing has happened to me at all. It's true.
jakelo1993@gmail.com
Well i had to find out about this the hard way....i was 13 when my blood cells broke down and i started peeing blood...doctors were baffled and thought it was kidney failure...but then my family doctor deduced that it was g6pd after finding out that my last meal was a huuuge bowl of fava bean....a lot of blood was needed....dad, an uncle and a cousin donated and saved my life...thankful to the doctor
P.s fuck u fava bean
WHAT KIND OF DOCTOR OR SPECIALIST DO I NEED TO SEE FOR G6PD
WHAT KIND OF DOCTOR OR SPECIALIST DO I NEED TO SEE FOR G6PD MY E-MAIL IS CAR34@YAHOO.COM
OMG pati pala mani bawal ! sampalok din bawal nku halos lahat ng food eh bawal
My son also has G6PD deficiency, only discovered when he ate fava (broad beans) at a friend's and had such a severe crisis that he had to have a blood transfusion. I would like to point out that there are many different types of this deficiency and sufferers can be affected by different things, the only constant being broad (fava) beans. Medication is not an issue for us as I have only ever given homeopathic and herbal medicines but I have noticed that although he can eat all of the foods you mention (except fava beans) he is affected by many artificial food additives and preservatives which give him terrible headaches. Even eating too many cold meats (which contain nitrates) can cause a problem and especially orange coloured foods. Every case seems to be different but many things will cause only a symptom and few a full blown crisis. My son knows what things affect him and won't eat them or if something he likes (like salami) will eat in moderation.
Even though my uncle was a sufferer in the 1940's, it was not known then that it was a genetic condition or that it was passef through the mother so, my mother and I had no idea we were carriers and it explains why we get excruciating headaches when we eat or drink certain things, red wine in particular. I give my son the schuessler salt Ferrum Phos which helped considerably with his recovery from the crisis and also helps when he gets his headaches. This is a very manageable condition so please do not get too distresses if your child os diagnosed with this. My uncle's treatment in the 40's consisted of eating stewed pears, and we have come a long way since then and now know more about the triggers and symptoms.
A x
hi
my 2 months son also has g6pd, but i don't know if he is severe or mild? How can i know? please help me to know how and what are the foods and drugs that should be avoided? please email me at angielyn_yuga25@yahoo.com / angielynsari30@gmail.com....thank u so much
@ Carlos - you need to see a metabolic physician for metabolic disorders.
My son is turning 6 months and he both have g6pd and galactosemia. Very conflicting in terms of the prohibited foods etc. Now, even he has g6pd, our doctor still had to switch his milk to a soy based formula be because he has galactosemia. She informed us that to date, there is still no clear evidence that soy based formula can have an adverse effect to g6pd deficients. But still he is under observation while on a soy based formula. There are a lot of websites which provides information about this disorder and by making sure to see your metabolic physician as scheduled, your kids will be fine.
i have a 1yr old son with g6pd.how can i determine if it is severe or mild?his confirmatory result was 0.78.im a breastfeeding mother should i avoid also the foods and drugs which is forbidden for him.pls help.tnx..email me @ xyra_trish@yahoo.com
My grandfather discovered he had G6PD after eating fava beans for the first lime when he was 65. He ended up in hospital having blood transfusions until they found out what was wrong with him. He served. I have three children, my eldest has be diagnosed with G6PD, he is allergic to milk and drinks soy and has an innocent heart murmur. Reading comments to this site makes me realise that I need to change my sons diet, especially to benefit his future. Thank you
THANKS SO MUCH FOR ALL THE INFORMATION GIVEN HERE ABOUT G6PD.I HAVE A 1 MONTH AND 16 DAYS OLD BABY BOY WHO WAS DIAGNOSED WITH G6PD. LIKE OTHER PARENTS OUT THERE MY HUSBAND AND I WERE VERY WORRIED ABOUT OUR CHILD'S CONDITION, I CAN'T EVEN SLEEP THE MOMENT I KNEW IT MY WORLD COLLAPSED AND I PITY MY SON IN HIS CONDITION. BUT THROUGH RESEARCHED I KNEW THAT MY SON COULD STILL HAVE A HEALTHY LIVING BY AVOIDING SUCH CONTRAINDICATED FOODS, DRUGS AND CHEMICALS. SO, TO ALL PARENTS LETS JUST BE RESPONSIBLE IN OUR CHILD'S CONDITION I THINK ITS JUST A MATTER OF DISCIPLINE AND SHOULD EDUCATE OUR CHILD'S IN THEIR CONDITION FOR THEM TO BE AWARE.
I WANT TO HAVE A COPY OF THE LIST OF FOOD, DRUGS AND CHEMICALS TO BE AVOIDED. PLEASE SEND ME TO THOSE WHO HAVE...MY EMAIL ADD: stephsayvi@yahoo.com.ph
tons of thanks!
I WANT TO HAVE A COPY OF THE LIST OF FOOD, DRUGS AND CHEMICALS TO BE AVOIDED. PLEASE SEND ME TO THOSE WHO HAVE...MY EMAIL ADD: ocean_eyes32@hotmail.com
Kindly guide me which food and fruits are eat if G6pd deficiency, mail me at sralkarimi@gmail.com
Thank you for sharing your thoughts about G6PD as both of my sons having this kind of deficiency.
Thanks for the info, Im a 35 male and had some blood work done, my G6PD was 1.0, how can I raise this number, and also can you provide me with info on Meds and Food to avoid,(rotarynutz05@yahoo.com) I exercise on a reg. dont take any supplements, take mostly vit,B-complex, D3, Fish and Flaxseed oils, Zija. I heard COQ10 is an avoid. Please advise Thanks.
My son is G6PD deficient and I come from Mediterranean background where this disease is prevalent. As another poster has mentioned, fava beans and mothballs and of course some medication are the main things to avoid. Our traditional diet is full of other legumes and it has been so for centuries and I don't believe one has to avoid them all. Have you actually seen research papers that show hemolytic crisis as the result of consumption of other legumes except fava beans?
My son is going threw some test he was in hospital for 3 days and the doctors are telling me it looks like he has G6Pd, thanks for all d information as before i never heard of this
i have a daughter turning 10 months old...she has g6pd too...thanks for the information listed above..hope you could post other foods that are to be avoided...
Hy to all , today i just found out that my 3yrs old son has a g6pd but plz can u help me which medicines , foods , fruits he should not take plz help me .....lutamike@yahoo.com/mlutalo279@gmail.com thanks
Best, and most up to date information available: www.g6pd.org I have been a member for 15+ years and there are new items on the list (since last year even). Please be informed. There are lists and brochures you can print, the site is free. There is even a list of all the ways "Fava" is written/spoken around the world on the site.
My dad was recently discovered to be G6PD deficient. His level is 0.5 while normal range is 4.5 - 13.5 U/g Hb activity. So it is as severe as it gets. He is 74 and has eaten legumes all his life as well as peanuts. I think this list is exaggerated. Our body survives on oxidation. If the defiant folks could not tolerate any oxcident, they would be dead before you could count to 10.
dohn121 2 years ago
This was great information. Fortunate enough, members of my family do not have any known allergies to foods. Many of the foods that you mentioned are among my favorites. Thanks, emievil!